100 million brazilian cohort and the cidacs birth cohort: Record linkage national data resources
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London School of Hygiene and Tropical Medicine CIDACS keppel st United Kingdom
London School of Hygiene and Tropical Medicine, United Kingdom
CIDACS, Brazil
Publication date: 2023-04-26
Popul. Med. 2023;5(Supplement):A655
Brief Outline Of Overall Workshop:
In this workshop, we will present the process of creating two cohorts from the linkage of routinely collected health and social data from a middle-income country. We will explain the methodology and linkage strategies to develop the 100 Million Brazilian Cohort and the Cidacs Birth Cohort, their characteristics and some applications of their use. SPECIFIC AIMS/OBJECTIVES AND COMPONENT PARTS: We aim to present the two Brazilian data resources developed at the Center of Data and Knowledge Integration for Health (Centro de Integração de Dados e Conhecimentos para Saúde, CIDACS/Fiocruz) using linked administrative dataset. * In the first part of the workshop, we will describe operational protocols for the acquisition, management, and linkage of large-scale, nationwide, administratively collected electronic health and social records in Brazil. * Then we will describe the 100 Million Brazilian Cohort (N=131,697,800 low-income individuals, 2001- 2018), which was initially developed to investigate the social determinants and the impact of social policies on the health of the low-income population across the whole of Brazil who apply for social benefits through the Unified Registry of Social Programs (Cadastro Único). The dynamic cohort links (i) individual-level health records, including information on birth, death, notifiable infectious diseases (e.g., dengue, Zika, chikungunya, leprosy, and tuberculosis) and their treatments, ICD-10-coded hospital admissions from both communicable and non-communicable conditions (e.g., mental health, cardiovascular disease, and cancer), and deaths coded with specific causes, (ii) community-level (e.g., local deprivation), household-level (e.g., housing quality), and individual-level (e.g., educational attainment) socioeconomic data, and (iii) intervention-related data on social policies (e.g., the Bolsa Família conditional cash transfer, social housing programme Minha Casa Minha Vida, and the improvement of access to water, the Cisternas (Wells) programs). After describing this resource, we will present the main findings of published studies. * The second data resource that we will present is the CIDACS Birth Cohort (N=28,631,394 liveborn children and mothers, 2001-2018), which was initially developed to investigate the impact of prenatal and early life events on health-related outcomes for infants, children, adolescents, and pregnant persons in the context of social inequalities. The dynamic cohort links (i) birth records, including information on antenatal care and perinatal outcomes from the Information System of Live Births (SINASC, Sistema de Informação sobre Nascidos Vivos) with (ii) socioeconomic and (iii) health outcome-related data from the 100 Million Brazilian Cohort. This dataset has been used to produce important scientific knowledge, and a studys findings will be presented. The Key Questions That The Workshop Will Address By the end of this workshop, the participants will be able to understand the strengths and weaknesses of these cohorts, as well as discuss the importance of these and other routinely linked data resources to knowledge generation and informed policymaking. We will also discuss the future perspectives involving the use of routinely collected data for research.