Advancing rare disease policy in Latin America: a call to action
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Pontifícia Universidade Católica do Rio de Janeiro - PUC-Rio, Brazil
Harvard University, United States
Publication date: 2023-04-27
Popul. Med. 2023;5(Supplement):A1604
People living with a rare disease are amongst the most vulnerable groups in society. They have been historically marginalized and systematically stigmatized. It is estimated that 300 million people worldwide live with a rare disease. Despite that, many countries today, especially in Latin America, still lack consideration of rare diseases in public policies and national laws. Based on interviews with patient advocacy groups in Latin America, we aim to provide recommendations for lawmakers and policymakers in Brazil, Peru, and Colombia on how to improve public policies and national legislation for persons living with rare diseases in these three countries.
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