Exploring the lived experience of Black African family caregivers of adults with intellectual disabilities living at home in the United Kingdom
 
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College of Health, Veterinary and Life Sciences: School of Health and Wellbeing, University of Glasgow, Glasgow, United Kingdom
 
 
Popul. Med. 2026;8(Supplement Supplement 1):A2688
 
ABSTRACT
INTRODUCTION:
The increasing diversity of the population in the United Kingdom (UK) has proportionally increased Black, Asian, and Minority Ethnic (BAME) families playing a significant role in supporting people with intellectual disabilities at home.1 However, there is very limited research reporting specifically on the experiences of Black African family caregivers of adults with intellectual disabilities, which is the focus of this research. People with learning disabilities experience profound health inequalities and the intersection of ethnicity and disability compounds the inequalities.2,3.

METHODS:
(i) A systematic review on the lived experiences of BAME families of adults with intellectual disabilities, providing insights into Black African families, a population group often researched within a combination of ethnic minority groups as (BAME). (ii) Semi-structured interviews to explore the daily lived experiences of Black African families of adults with intellectual disabilities living in the UK.

RESULTS:
Preliminary findings from the systematic review and analysis of 10 interviews will be reported. Initial analysis from the systematic review and interviews has identified several over arching themes including stress on families, unmet expectations such as difficulties accessing services and family support, lack of cultural relevance in service provision, and discrimination based on disability, ethnicity, and gender.

CONCLUSIONS:
This research will inform service providers and policy makers about how to better reach and support this marginalised population group. The study also has potential to make a unique contribution to empirical data and is timely given the current issues of disability and ethnicity arising from the UK and international sociological and public health contexts.
eISSN:2654-1459
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