FörGes 5 - An intervention for strengthening self-management competencies of family caregivers of persons with dementia of Turkish origin in Germany
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Alice Salomon University of Applied Science Berlin, Germany
Bielefeld University
Witten University, Germany
Publication date: 2023-04-26
Popul. Med. 2023;5(Supplement):A1371
Background and Objective:
The majority of persons in need of long-term care who are of Turkish origin in Germany are cared for at home by their relatives. The home care situation can be accompanied by a high physical, psychological and social burden for the caregivers. It is necessary to support family caregivers to counteract possible overload and excessive demands. The aim of the project is the development, implementation, and validation of an intervention to strengthen the self-management competencies of family caregivers of persons with dementia.

A document analysis of caregiving-related information material in Turkish was conducted, and 10 family caregivers were interviewed about their needs and information wishes. Based on the results of the qualitative content analysis, an individualized participatory intervention was developed, consisting of weekly home visits by a Turkish-speaking specialist over six months. Interviews with participants were subsequently conducted again to evaluate the intervention.

Family caregivers often have information deficits on dementia caregiving and are exposed to stresses, e. g. financial worries, and social isolation. Wishes expressed support in everyday caregiving, in applying for services, offers for relief, and care by culturally sensitive professional caregivers. Implementation revealed that different family constellations, age groups, genders, and care situations are associated with different needs and requirements. Further, different stages of self-management support among family caregivers can be identified. The intervention reinforced the self-organization of family caregivers and empowered them to provide mostly independent health and nursing care for their family members.

To support and strengthen family caregivers of persons with dementia of Turkish origin, outreach and native-language interventions adapted to the individual persons and family situations are necessary for acceptance by the family members. The diversity of those affected is a central aspect that can be addressed through a diversity-sensitive orientation of interventions.

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