Needs of dementia caregivers in LMICs: a narrative scoping review
More details
Hide details
1
Public Health, Monash University, Tangerang, Banten, Indonesia
2
Ageing Research Center, Atma Jaya Catholic University of Indonesia, Jakarta, Indonesia
3
Public Policy and Management, Monash University, Tangerang, Banten, Indonesia
4
School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia
Popul. Med. 2026;8(Supplement Supplement 1):A1080
ABSTRACT
INTRODUCTION:
Physical and mental burdens are common among dementia caregivers. This burden requires increased support to ensure effective caregiver performance. However, support for dementia caregivers is often overlooked in low- and middle-income countries (LMICs) where formal support remains limited, often resulting in unmet needs from caregivers’ end. Therefore, understanding caregivers' needs is crucial for developing appropriate support. The purpose of this study is to map the needs of caregivers for dementia in LMICs.
METHODS:
This narrative scoping review utilized databases at various sources like PubMed, Scopus, PsycINFO, CINAHL, and Google Scholar, along with reports from government, non-governmental organizations (NGOs), and private companies, by searching manually for information from 2010 to 2025. A total of twenty articles were analyzed using a deductive analysis approach based on research by Queluz et al.
RESULTS:
In addition to families, health workers, volunteers, and domestic workers are key groups supporting dementia services. The needs of dementia caregivers are more often met by the informal sector and can be categorized into six main themes: Emotional Needs, Educational Needs, Social Needs, Financial Needs, Counseling Needs, and Spiritual Needs. Unique to LMICs, religion-based strategy approaches are needed, which can serve as a bridge that connects them to healthcare professional services. Furthermore, caregivers in LMICs employ a community-based approach which fits cultural context within LMICs.
CONCLUSIONS:
The needs of caregivers in LMICs still need to be explored, particularly among the community health workers, volunteers, and domestic workers who support dementia services in LMICs. Existing services must be able to address emotional, counseling, and spiritual needs by combining the roles of formal and informal structures.